Ups and Downs

I apologize for the late update post today as time got away from me a bit, and Liam’s sleep cycle got a bit mixed up and he has stayed up quite late tonight. We had a very successful day with feeds and are currently going at 25mls/hour with the plan of bumping to 30mls/hr around midnight. Liam was pretty sleepy through the morning but got up in the afternoon and enjoyed a session with physical therapy and the music therapist as well. The highlight of the day was a visit from Uncle Jake and Aunt Sarah where we finally saw some Liam smiles and giggles.

Thus, overall it has been a very productive and successful day on the right path towards going home. Unfortunately, Liam also had more struggles with seizures today as well. It’s a sign that his body is getting closer to back to “normal”, but it’s hard to see him suffer in yet another way. He also struggled with two 30 minute times of agitation and screaming overnight which threw off his sleep cycle a bit. In the end, we will certainly take the progress, but we also have to accept the ups with the downs which can be difficult sometimes.

Thank you as always for the continued prayers and support. We are so deeply grateful!